THE CAUSE
THE COLOR PHOR A CURE
Color PHor A Cure was founded by Josh & Lindsey Belt of Jennings, Louisiana. In January of 2013, Joel Belt (Josh & Lindsey’s 2 year old son) was diagnosed with severe primary pulmonary hypertension (PPH). After 42 days in 3 different hospitals, Joel was sent home with very intensive medication with the hope to improve his quality of life. Since there is NO CAUSE found for why Joel has PPH, that also means there is NO CURE. He currently has only two options at the moment: medicine for life or a double lung transplant.
Today, Joel is currently being seen by some of the greatest PH doctors at Texas Children’s Hospital. He is currently on a 24/7 IV medication that is being infused directly into his heart as well as taking half a dozen other oral medications. Unfortunately, at this time no PH medication given to children is FDA approved. Barring a miracle, this will be a life long journey for Joel and the Belt family. This is where you can help! Joel needs your help in raising funds to find a cure in his lifetime.
WHAT IS PH?
Pulmonary hypertension (PH), a rare and often misdiagnosed disease. The disease causes high blood pressure in the pulmonary arteries. This makes it harder for the blood to flow through the lungs to pick up oxygen. This causes potentially lifethreatening consequences such as right heart failure. When diagnosed in time, treatments can be administered that improve quality of life and may prolong it. While research has come incredibly far in the last 15 years or so, with nine approved PH therapies and many more in the pipeline, none of these therapies is approved for use in children.
THE CAUSE
100% of all the proceeds from the race will go to help raise awareness and research funds for PHA’s Dr. Robyn J. Barst Pediatric Research and Mentoring Fund for Pulmonary Hypertension. This is the only pediatric PH research fund in all of the United States. You can learn more about PH at phassociation.org
REGISTER
COST
$30 before September 1
$40 after September 1
$50 day of Race
Free for Kids under 7 (kids will not get a shirt, but can purchase one on race day)
$20 for PH warriors and their caregivers
VOLUNTEER
Just like at Christmas and birthdays, ’tis better to give than receive… right? If you want to pummel your friends and family with color rather than be pummeled, sign up to volunteer below and join the COLOR BOMBERS. This historic event will require an army of crazy volunteers! Below is a brief overview of the teams that we need volunteers for:
Street Team
Sponsorships
Pre- Race Prep
Color Bombers
Registration
Water Stations
Course
Set-Up & Clean-Up
All volunteers will receive one of the coolest, Color PHor A Cure volunteer shirt. Students are also welcome to volunteer as well but we do request that any volunteers under the age of 16 have a parent or adult volunteer with them. So what are you waiting for…VOLUNTEER NOW!
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